This was my best week in nearly two months! I have been pushing a little bit harder, despite still having trouble with my stimulator. I am still trying to co-ordinate care for that. (So frustrating!) But in the meantime, I got nearly five miles this week, and I am doing my best to keep things […]
Read MoreIt’s a rough time right now. I’m going through a period where my feeding tube formula has been cancelled, and so I am trying formula after formula (and none of them are working out… yet!) They make me really ill, and also, on top of that, I am still having trouble with my Enterra Device […]
Read MoreA small improvement on the previous week, but I only managed to walk just a little under four miles. It’s always a little stressful coming back from any surgery, even a day surgery. I am only just now (as I type this) starting to get moving around a little more. I hope next week is […]
Read MoreTerrible week. Horrendous. The last time I did this poorly in a week was almost five months ago? I don’t even know what was going on at that time. This week I was dealing with trying to adjust to a brand new formula (mine was discontinued. :() but also I had to have day surgery […]
Read MoreI managed to walk just a little bit less than last week. Nearly the same, but just a smidge less. Honestly I spend this week with a feeding tube infection, largely due to the fact that I cracked the connector on my feeding tube and was waiting for them to replace the thing. So, I […]
Read MoreI’m having an extremely hard time right now, because my feeding tube has started malfunctioning. Of course it has. I have my regular scheduled feeding tube exchange coming up, but of course this won’t be that easy now even if I don’t have to call in for an emergency surgery. Now will it. (Frown). But […]
Read More
