Leaping to Lothlórien Week #159

On the one hand, it’s been exactly thirty-six weeks… So almost nine months (cry) since I have had a week go this badly. But I am still titrating up on my formula at a painstaking low rate, and I also have a feeding tube infection right now, so I am fighting fevers. None of that […]

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Leaping to Lothlórien Week #158

Getting on a new feeding tube formula is tough. I always think to myself “I’m gonna do it this time! It won’t take long!” The reality is terrible though, I’m not adjusting to the new formula extremely well. I guess it’s still going better than the other two I have recently tried, though, so I’m […]

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Leaping to Lothlórien: Week #155

This was my best week in nearly two months! I have been pushing a little bit harder, despite still having trouble with my stimulator. I am still trying to co-ordinate care for that. (So frustrating!) But in the meantime, I got nearly five miles this week, and I am doing my best to keep things […]

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