I am still on my way to Lothlórien, with quite a long way to go, but! I am under the 300 miles left to go mark. I’m temporarily slowed down by the fact that I am still titrating up super slowly on my feeding tube formula. It’s getting better, but some days I have more […]
Read MoreOn the one hand, it’s been exactly thirty-six weeks… So almost nine months (cry) since I have had a week go this badly. But I am still titrating up on my formula at a painstaking low rate, and I also have a feeding tube infection right now, so I am fighting fevers. None of that […]
Read MoreGetting on a new feeding tube formula is tough. I always think to myself “I’m gonna do it this time! It won’t take long!” The reality is terrible though, I’m not adjusting to the new formula extremely well. I guess it’s still going better than the other two I have recently tried, though, so I’m […]
Read MoreIt’s a rough time right now. I’m going through a period where my feeding tube formula has been cancelled, and so I am trying formula after formula (and none of them are working out… yet!) They make me really ill, and also, on top of that, I am still having trouble with my Enterra Device […]
Read MoreI’m picking up just a little better than I had been, but I’m starting to struggle with my feeding tube and my potassium again as I draw close to what could be my first ever (maybe, if I make it) real feeding tube exchange. I have gone longer than I have ever gone before without […]
Read MoreTake Two! Well, well, well. What a fucky little surgery this was. Terrible. And I am in here again after I have already written the post for it. Kind of crazy how that works out. But, things kept not going as planned because my feeding tube is still a constant issue. And that being what […]
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