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Mewing Around

Today was the first day since we had my port revision surgery that I woke up and felt like my energy was returning. Maybe I am finally starting to turn a corner. It’s been twelve days post op, and that’s a little longer than it originally took me when I had my first port placed […]

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complications, Daily Life, ehlers danlos, Gastroparesis, Health, Health and Medical, pictures, port revision surgery, Power port
June 10, 2021March 2, 2023 by Red Vinyl Kitty
  • Health and Medical

Vita-Fail

Here I am, loafing in bed again. That was me earlier waiting for the nurse. She says she’s going to watch Gob closely for a week to give the Medi-gel, C shapes and the Aquacel time to work. She’ll be back on Tuesday and will decide whether to send us back to the surgeon or […]

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Ehlers-Danlos Syndrome, Gastroparesis, Gob, Health, Loop ileostomy, Ostomy, Surgery, Unintentional Weight Loss, whinge
February 17, 2016August 1, 2021 by Red Vinyl Kitty
  • Health and Medical

New Nurse

Snuggling in the dark with ZeeBee. I’m feeling pretty crummy today. I woke up too nauseated to take any of my pills, even the liquid stuff. I took nausea medicine (dissolves, not a pill or liquid) and I was able to take my meds. I have a low grade fever (100.0) that comes and goes. […]

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Ehlers-Danlos Syndrome, Gastroparesis, Gob, Ileostomy, Loop ileostomy
February 11, 2016August 7, 2021 by Red Vinyl Kitty

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