On the one hand, it’s been exactly thirty-six weeks… So almost nine months (cry) since I have had a week go this badly. But I am still titrating up on my formula at a painstaking low rate, and I also have a feeding tube infection right now, so I am fighting fevers. None of that […]
Read MoreGetting on a new feeding tube formula is tough. I always think to myself “I’m gonna do it this time! It won’t take long!” The reality is terrible though, I’m not adjusting to the new formula extremely well. I guess it’s still going better than the other two I have recently tried, though, so I’m […]
Read MoreThis was my best week in nearly two months! I have been pushing a little bit harder, despite still having trouble with my stimulator. I am still trying to co-ordinate care for that. (So frustrating!) But in the meantime, I got nearly five miles this week, and I am doing my best to keep things […]
Read MoreIt’s a rough time right now. I’m going through a period where my feeding tube formula has been cancelled, and so I am trying formula after formula (and none of them are working out… yet!) They make me really ill, and also, on top of that, I am still having trouble with my Enterra Device […]
Read MoreA small improvement on the previous week, but I only managed to walk just a little under four miles. It’s always a little stressful coming back from any surgery, even a day surgery. I am only just now (as I type this) starting to get moving around a little more. I hope next week is […]
Read MoreTerrible week. Horrendous. The last time I did this poorly in a week was almost five months ago? I don’t even know what was going on at that time. This week I was dealing with trying to adjust to a brand new formula (mine was discontinued. :() but also I had to have day surgery […]
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