An exciting week! Well, not to hear about perhaps, but from my perspective it’s pretty damned thrilling. I finally got my hernia belt! I’ve been waiting on it since before November, and it has been awful because I’ve been practically bedridden all this time. I’ve been trying to do what I could to maintain muscle […]
Read MoreThis week has been really really hard for me. In the beginning I was managing kind of okay, but by the end of it things escalated to a bad point where I’ve been stuck in bed for 95% of my day. This parastomal hernia is the most painful thing I have ever experienced. I’ve been through […]
Read MoreThis week was mixed. Let’s start with the shittiest news first. I like getting the crappiest news out of the way. We’ve been waiting for months to get back to the big hospital to see the geneticist who was supposed to get me in to see a rheumatologist as well as a cardiologist and a […]
Read MoreContent Warning: Gross Poop and OSTOMY talk here! Leave now if you don’t want to read about how my first six months with Gob have gone. I can’t believe that I’ve had Gob for six months today. I really can’t. I also can’t believe that I was diagnosed with gastroparesis almost a year ago. I […]
Read MoreTHANK YOU MYSTERY GIFT GIVER!! I received a single Medi-Gel (OK, it’s actually called Marathon) off of my Amazon Wishlist from someone but there was no note so I have no clue who sent it! If you are reading this and would like me to credit you here either with your first name or a […]
Read MoreAt my last blood tests we found out I’m borderline anemic again. I think the problem has gotten worse even in the last week because I feel terrible. I tire incredibly easily, am paler than usual, and I’m losing weight like crazy. Prednisone was a boon in the beginning but it makes it impossible for […]
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