It’s a rough time right now. I’m going through a period where my feeding tube formula has been cancelled, and so I am trying formula after formula (and none of them are working out… yet!) They make me really ill, and also, on top of that, I am still having trouble with my Enterra Device […]
Read MoreTerrible week. Horrendous. The last time I did this poorly in a week was almost five months ago? I don’t even know what was going on at that time. This week I was dealing with trying to adjust to a brand new formula (mine was discontinued. :() but also I had to have day surgery […]
Read MoreI managed to walk just a little bit less than last week. Nearly the same, but just a smidge less. Honestly I spend this week with a feeding tube infection, largely due to the fact that I cracked the connector on my feeding tube and was waiting for them to replace the thing. So, I […]
Read MoreI’m having an extremely hard time right now, because my feeding tube has started malfunctioning. Of course it has. I have my regular scheduled feeding tube exchange coming up, but of course this won’t be that easy now even if I don’t have to call in for an emergency surgery. Now will it. (Frown). But […]
Read MoreI’m picking up just a little better than I had been, but I’m starting to struggle with my feeding tube and my potassium again as I draw close to what could be my first ever (maybe, if I make it) real feeding tube exchange. I have gone longer than I have ever gone before without […]
Read MoreAnother only okay week for me. I didn’t even make my average of five miles, but some of the minor injuries that have been making it harder to get around have been healing. One thing which is annoying is that, when I am on my (YouTube) Kart, my steps don’t generally track. So there’s several […]
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