On the one hand, it’s been exactly thirty-six weeks… So almost nine months (cry) since I have had a week go this badly. But I am still titrating up on my formula at a painstaking low rate, and I also have a feeding tube infection right now, so I am fighting fevers. None of that […]
Read MoreIt’s a rough time right now. I’m going through a period where my feeding tube formula has been cancelled, and so I am trying formula after formula (and none of them are working out… yet!) They make me really ill, and also, on top of that, I am still having trouble with my Enterra Device […]
Read MoreTerrible week. Horrendous. The last time I did this poorly in a week was almost five months ago? I don’t even know what was going on at that time. This week I was dealing with trying to adjust to a brand new formula (mine was discontinued. :() but also I had to have day surgery […]
Read MoreI managed to walk just a little bit less than last week. Nearly the same, but just a smidge less. Honestly I spend this week with a feeding tube infection, largely due to the fact that I cracked the connector on my feeding tube and was waiting for them to replace the thing. So, I […]
Read MoreI’m having an extremely hard time right now, because my feeding tube has started malfunctioning. Of course it has. I have my regular scheduled feeding tube exchange coming up, but of course this won’t be that easy now even if I don’t have to call in for an emergency surgery. Now will it. (Frown). But […]
Read MoreI’m picking up just a little better than I had been, but I’m starting to struggle with my feeding tube and my potassium again as I draw close to what could be my first ever (maybe, if I make it) real feeding tube exchange. I have gone longer than I have ever gone before without […]
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