I write this, slightly grumpily, still in “bed.” Well, I’m in my sick kitty bed. That means the pull out couch. I still do not have my parastomal hernia belt and it’s stupid because I should! We called up the clinic where I got the belt from, and they blamed us for their error in […]
Read MoreI’ve been on heavy dose steroids now for about four months and before I went on them, I knew it was going to be rough. The side effects of them are well documented and I’ve mentioned before in a previous post about how I’ve dealt with some of them on the other steroid I took […]
Read MoreYesterday I made I tweet where I said getting better is complicated and frustrating. It’s true, it is. I hadn’t tweeted all day and I wanted to tweet something, but I didn’t want it to be complicated and long, so that’s what came out. So true, it is. I started the Prednisone on Friday. I […]
Read MoreAt my neurology appointment last week, we discovered I have a lot of protein in my urine, which means my kidney damage is progressing, and the last time we checked I had thirty percent kidney damage, but no one knew why. We are certain this is from the autoimmune condition now. I need to see […]
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