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Once More…

I mentioned in the last post that I’ve been really hoping the bleeding would settle down in my wound, but unfortunately nothing was getting better and we couldn’t just keep waiting. My doctor refused to see me until I went to the ER because in her words “I told you to go before, and my […]

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abscess, BDSM, ehlers danlos syndrome, Emergency Room, Gastroparesis, Health, infection, leather collar
June 12, 2021June 11, 2021 by Red Vinyl Kitty
  • Daily Life

Mewing Around

Today was the first day since we had my port revision surgery that I woke up and felt like my energy was returning. Maybe I am finally starting to turn a corner. It’s been twelve days post op, and that’s a little longer than it originally took me when I had my first port placed […]

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complications, Daily Life, ehlers danlos, Gastroparesis, Health, Health and Medical, pictures, port revision surgery, Power port
June 10, 2021March 2, 2023 by Red Vinyl Kitty
  • Health and Medical

Vita-Fail

Here I am, loafing in bed again. That was me earlier waiting for the nurse. She says she’s going to watch Gob closely for a week to give the Medi-gel, C shapes and the Aquacel time to work. She’ll be back on Tuesday and will decide whether to send us back to the surgeon or […]

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Ehlers-Danlos Syndrome, Gastroparesis, Gob, Health, Loop ileostomy, Ostomy, Surgery, Unintentional Weight Loss, whinge
February 17, 2016August 1, 2021 by Red Vinyl Kitty
  • Health and Medical

New Nurse

Snuggling in the dark with ZeeBee. I’m feeling pretty crummy today. I woke up too nauseated to take any of my pills, even the liquid stuff. I took nausea medicine (dissolves, not a pill or liquid) and I was able to take my meds. I have a low grade fever (100.0) that comes and goes. […]

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Ehlers-Danlos Syndrome, Gastroparesis, Gob, Ileostomy, Loop ileostomy
February 11, 2016August 7, 2021 by Red Vinyl Kitty

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