CONTENT WARNING: Discussions of medical nature. Talk of feeding tubes. Some blood. You’re responsible for your own time on the Internet and you get to choose where and how you spend it. If reading medical posts will upset you please do not read further. If you’re interested, please go on.
I wasn’t sure where to put this exactly, but it didn’t seem like the right place was in the weekly walking update. Normally when I have a feeding tube exchange it takes me out of things for a day, maybe two at most if things were exceptionally rough. But last time really seemed so much worse than ordinarily and I have no clue why. When I came home I had dizzy spells on and off for three or four days. My feeding tube also bled for three days (and that shouldn’t happen at all).
I also experienced five pounds of weight loss in the first five days after I returned home. I know five pounds is not a lot to most people, but it’s incredibly staggering for me to lose a chunk of weight like that and so when I do it makes me really shaky and can take me a little while to either regain it or to stabilize. I’m not entirely sure if they inflated the balloon too much internally (thus making it too difficult for me to intake what little food I could intake) but I can eat even less than I could before I went into the hospital. I usually get by on very little in addition to my feeding tube formula. What I do get by on apparently was helping me maintain my weight better than I realized, though. We’re working on increasing my formula rate though so we’re hoping things go in a better direction soon. I do feel less shaky than when I first came home.
I feel like. Overall, this wasn’t my best hospital trip. I really don’t know what made this feeding tube in particular so difficult to work with, but between the weird dizziness and the weight loss it took about a week for me to feel stable enough to get back to doing active things around the house when I got home. And, recovering is well and good but a feeding tube exchange is supposed to be relatively minor. I don’t know why these things can never seem to go according to plan.
Still. I am finally feeling ready to try to take things on again. I’m going to start slow and get back into it.